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Category: Patient and Family Support

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Challenges and Some of the Potential Solutions to Delivering Patient and Family Centered Care

The Patient Perspective (Ken Burkhom)
What the Bedside Nurse Sees (Erin Strong)
How the ICU Team Adapts (Jackie Guiliani, Preeti John)
Addressing the Repercussions of “Social Distancing”
Requests for inappropriate care, managing conflict (Alex Kon)
Shared decision making, care at the end of life & Social justice considerations (Giora Netzer)
Impact of contingency, crisis operations on communication challenges (Mary Faith Marshall)

Curriculum Topic: Shared Decision-Making and End-of-Life Care


A Modified Delphi Process to Prioritize Experiences and Guidance Related to ICU Restricted Visitation Policies During the Coronavirus Disease 2019 Pandemic

From Critical Care Explorations. The authors created evidence-based consensus statements for restricted ICU visitation policies to support critically ill patients, families, and healthcare professionals during current and future pandemics.


THRIVE: Discharge From the ICU

There are five key areas patients and families should consider they prepare to be discharged from the ICU or hospital. These include the equipment you may need for daily activities at home, what medications you may need and common mistakes about medications, follow-up appointments, and what do if you are struggling at home.


THRIVE: Pediatric Post-Intensive Care Syndrome and the Family

Children may experience post-intensive care syndrome (PICS) after a stay in the intensive care unit. Symptoms include learning and attention difficulties, post-traumatic stress disorder, sadness and depression, difficulty sleeping, behavior changes, motor dysfunction, breathing problems, feeding problems and difficulty hearing and seeing. Families may also be impacted by PICS. Help prepare your whole family to identify and treat PICS. 


THRIVE: Pediatric Post-Intensive Care Syndrome

As children leave the pediatric intensive care unit, parents may notice changes. Some children may have additional needs after a stay in the PICU. This video aims to share stories and examples that exemplify challenges after a PICU stay. 


THRIVE: Recovery After a Hospitalization for Sepsis

Sepsis is the body’s overwhelming and life-threatening response to infection. This video offers strategies for sepsis survivors and their families


Warrior Within: Audio Relaxation

The Warrior Within is an audio relaxation exercise that post-intensive care syndrome (PICS) suffers can use as part of a meditation practice.  


Intensive Care: A Guide for Patients and Relatives

Intensive Care: A Guide for Patients and Relatives is a booklet produced by ICUSteps. It contains advice and information about intensive care. It tells you how critical illness may be treated and what recovery may be like. 


ICU Steps: Empathy, not Sympathy

ICUsteps is the United Kingdom's only support group for people who have been affected by critical illness and has helped many former patients, their relatives and medical staff from organisations around the world.


AftertheICU.org

After the ICU is a group of doctors, former patients and other healthcare professionals, working together to provide ICU patients, their families and other medical professionals with information about the road to recovery after critical illness


Healthtalk.org

healthtalk.org provides free, reliable information about health issues by sharing people's real-life experiences. 


ICU Delirium

The ICU Delirium website provides resources for patients and families about delirium. 


Sepsis Alliance

The Sepsis Alliance aims to educate the public and healthcare professionals about sepsis.


AfterPICU.com

AfterPICU.com offers resources for children and families following a critical illness.


PICU Parent

The goal of PICUparent is to help parents understand their child's healthcare.  


THRIVE: Redefining Recovery

More people are surviving critical illness, leading to an increase in a condition called post-intensive care syndrome (PICS).  This video aims to help educate ICU survivors and their families about PICS. 


SCCM Pod-228 CCM: Screening Criteria for Palliative Care

Michael Weinstein, MD, FACS, FCCP, speaks with Judith Nelson, MD, JD, lead author on an article published in the October Critical Care Medicine, “Choosing and Using Screening Criteria for Palliative Care Consultation in the Intensive Care Unit: A Report From The IPAL-ICU (Improving Palliative Care in the ICU) Advisory Board.”


SCCM Pod-189: Expanding Palliative Care Training for Fellows

Michael Weinstein, MD, FACS, FCCP, speaks with Alyssa Majesko, MD, MS, about her article published in the August Critical Connections, which discusses the importance of training fellows in palliative care and the use of effective communication.


SCCM Pod-75 CCM: Spiritual Care in the ICU

Richard J. Wall, MD, MPH, and Nancy Chambers, MDiv, discuss an article published in the April issue of Critical Care Medicine titled, "Spiritual Care of Families in the ICU." 


Creating a Culture of Caring: An ICU Patient Profile

This article was first published in the August 2019 issue of Critical Connections. The world of Rana Awdish, MD, changed on the last day of her pulmonary and critical care fellowship at Henry Ford Hospital in Detroit, Michigan, USA. It was 2008, and Dr. Awdish, who was seven months pregnant, was eating dinner in a restaurant to celebrate with her best friend when she was struck with sudden, unbelievable pain.