Patient-Centered Outcomes Research Institute Projects

The Patient-Centered Outcomes Research Institute (PCORI) is an independent, nonprofit organization that funds research that will provide patients, their caregivers, and clinicians with the evidence-based information needed to make better-informed healthcare decisions. PCORI is committed to continually seeking input from a broad range of stakeholders to guide its work.

Current Projects

Addressing Barriers to Engaging Patients and Caregivers Experiencing Critical Illness to Build Capacity for Patient-Centered Outcomes Research

The Society of Critical Care Medicine (SCCM) is collaborating with Vanderbilt University School of Nursing on a project that will use group concept mapping to gather input from patients, family members, clinicians, researchers, and others to identify strategies that can be used for overcoming barriers to engaging patients and family members in patient-centered outcomes research (PCOR) in the ICU and post-ICU settings.

As part of this project, an article was recently published in American Journal of Critical Care to identify strategies to overcome recruiting patients and family members for this important research.

Almost 100 barriers were identified and strategies to overcome the barriers are available in an open-access, web-based toolkit.

Read the Article
Watch the Video On the Article
Access The Toolkit

Project Colead: SCCM Past President Ruth Kleinpell, PhD, RN, FAAN, FAANP, FNAP, MCCM
Project Colead: Marianna LaNoue, PhD
SCCM Staff Partner: Adair Andrews, RN, MATD; Susan Lacey, RN, PhD, CNI, FAAN

Funding
This project was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (EACB-26623)

News

• Society of Critical Care Medicine to Collaborate With Vanderbilt University School of Nursing in Project on Overcoming Barriers to Patient- and Family-Centered Comparative Effectiveness Research
• Vanderbilt School of Nursing Approved for a $250,000 Engagement Award for Project on Overcoming Barriers to Patient- and Family-Centered Comparative Effectiveness Research

Completed Projects

Patient-Centered Outcomes Research - Intensive Care Unit (PCOR-ICU)

The PCOR-ICU Collaborative: Improving Care for Critically Ill Patients and Families Through Research Dissemination and Implementation brought together ICU teams to implement patient- and family-centered care initiatives. The teams participated in a 10-month collaborative to implement a patient and family engagement initiative focusing on one of the following initiatives:

• Integrating patient and family participation in rounds (patient- and family-centered rounds)
• Integrating structured patient and family care conferences to mutually establish the goals of care
• Disseminating information and providing support to families about ways to assist with the care of their loved one
• Implementing open visitation (non-restricted ICU hours)
• Facilitating the use of patient and family ICU diaries
• Implementing integrative therapies, such as music or pets, in the ICU setting
• Forming or enhancing an effective patient and family advisory group
• Other project of the team’s choice relevant to patient- and family-centered care

Project Leads: Ruth M. Kleinpell, PhD, RN-CS, FAAN, FCCM, and Jerry J. Zimmerman, MD, PhD, FCCM

Funding
This program was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (2626-SCCM).